One in 60,000 babies.

Having a preemie is filled with doctor appointment after doctor appointment. If chase isn't going in for is acid reflex,which is under control now. Its a weight check because how small he is due to being a preemie and having acid reflex.Tomorrow we have a weight check to make sure he is still gaining like he was 2 weeks ago.He lost a few ounce last month. Then a week later only gained 2 ozs back. But his last doctors appointment he gained 12 ozs in 6 days. He has to see a geneticist for his Galactosemia in December.I hate exposing my child to having to see so many doctors if that makes any sense.But to get back to Galactosemia one in every 60,000 births a baby will be diagnosed with this genetic disorder. From what I read the liver does not make enough enzymes to break down the sugar galactose.Chase is the second case to be recorded to have 2 genes of it in his DNA. We had more of a chance to win to lottery twice or more then our child having 2 genes of it. I am reminded every day of his disorder while I am preparing a bottle for him(of soy based formula) ,I was breastfeeding when we found out he had it and I felt like I was doing the best thing for my child. Breastfeeding supports immunity to SO many disease. Part of me feels like the chance was stolen away from me.

This week at school is red ribbon week.Don't do drugs!The kids are having fun dressing up like nerds and inside out day. Brooke keep mentioning she needs a "day off of school" middle school is really taking a toll on her. She is doing good and likes it. But she is ready for Thanksgiving break and Christmas break. I remember feeling the same way.Then once being sick all the time I enjoyed going to school when I felt good enough to enjoy it. John is enjoying kindergarten.I cant believe he has the same teacher I did.He tells me all about recess and snack time and how they draw pictures of words that start with the letter of the day or week. I am feel so blessed to be a part of their life's.

3 Months Old