Blogger's Love To Read Other Blogs!

I have been doing a lot of reading blogs lately. Some I just have to share..I have been reading one amazing woman's blog everyday now since I did some research of my own for my son's condition Girl To Mom's blog is one of the greatest blogs I personally came a crossed. Also a great blog, I think that help's explain a child going threw EDF casting is  The Infantile Scoliosis Chronicles. I have been trying to read every I can about Chase's Scoliosis. The more I know, the more I can help chase in the decisions I may have to make in his treatment.

I swear chase gets in these growth spurts of new words and actions. All of sudden out of no where its like BANG chase changes his bed time, is talking more, and trying to walk. He has been arguing with me all day. Throwing his hands around yelling and have this look on his face of seriousness.And like 4 new words in 3 days. He will drop a toy and say bye bye to it. So freaking cute how he does it. Now I am just blabbering away about little things that babies normally do. But when its your child, its the cutest thing ever and you wanna get your camera but when them moments come you do have it in your hand!

We are having a problem with little runner's around here.All the kids wanna run in the house,and now one of them is getting in trouble in school for running in the school. So I suggested to mike that we have the kids write "I will not run in the hall way" demending on which child it is at our home and their age will depend on how many times we feel is fair for their age. And if we get a note from school. After going over school rules of no running and way sentience will be punishment.

How do you deal with punishment for certain things?

A Productive Weekend With The Conlee Kids!

So we had a productive weekend at The Conlee House. Got everything straightened out to be messed up this week.  This week is just like any other week filled with Chiropractor,PT, Looking for a good hotel in Chicago,and getting ready for next week. On top of all the stay at home mommy duty's.This week didn't start off good. Me and Chase are sick! First colds of the season. Good ol mucus draining in the back of the throat waking up with eyes mated,and top it all off a cough that seems to take away energy from me.

Chase has a new thing he loves to do. He know how to yell for "brober"=brother. The past 2 nights he had to play in johns room with him before bed.

My Little boy's

Chase took in FIRST step Saturday night  while playing with John. I think you could of heard me a block away. Yelling,OMG he tried to walk. Momma was proud. But just look at them two, I swear chase is a little John Jr. We are all so use to seeing the brace on Chase and Chase is so use to it. I think we all forget he has it on.

"Conlee Angels"

Dar figured on how to use my phone and had a little photo-shoot of her own a couple of times this weekend. Cracks me up to see the pictures on my phone. She even got smart and learned how to post them on my Facebook.  















We had a pretty good weekend,I must say. I had all 5 kids by myself. I really cant say it was horrible at all. We had some issues but your always going to have issues with a pre-teen?How do you punish your pre-teen for talking about,hiding messes in rooms(I use to do this my self all my childhood I'll admit I was a pack rat) and beating on siblings? If you took something away,how long was they grounded from it?

One Step Closer,But Still No Sight Of The End Yet.

We got the call we have been waiting for every minute since Monday for. Shriners Hospital for Children's called. Chase has gotten a appointment with a doctor that can give us more hope and help to give him more of a chance of not having to go in for surgery. There will always be a chance till skeletal matured age. But EDF casting helps CURE Progressive Infantile Scoliosis. We all just gotta BELIEVE this will work and CURE.

I have truly missed the older kiddo's around the house the past 2 days. I feel lost. Its really busy when having 4 kids and just me here while mikes in the fields. But I have to say,they keep me positive. And I love hearing school story's of what happened. Or the art work they did. Just the little bragging for how good they did. It really makes me look at the little things in life and smile. I always have praised them for any work they have done. And if it wasn't a good grade,we talk about what they could of did to get it right. We fix the mistake at home to help them learn and I always tell them "we know our mistakes now and that's all we can do now and try our best once again next time huh?". John brought a picture home of his family he had to draw. He had Dad, Mom, Cady, Brooke, and himself. He told me he was kinda ashamed he did put me and chase down. I was kinda hurting at first and thought maybe he wasn't accepting of the "new family members". But I stepped back and thought, its still probably hard for him to come to terms with everything. I know he loves us. And he has never showed any real signs of rebelling towards,Me or Chase. He will flat out tell anyone he likes not being the littlest brother anymore. Or will tell me he don't want mommy mad that he loves me because I do everything that a mommy should do for him. But just that picture showed that a child still after 3 years wishes that mommy and daddy was still together. And that subject is a very touchy subject to try to talk about.

The weather is getting to my favorite time. Fall is like the best season. I love colorful tree's. And now that chase can enjoy the park,its a great time to go to parks and play. I think that's what we might do tomorrow. Get the stroller out and all of us will go to the park close to home.



 

Short...but to the point. Of nothing.

Had a up lifting day. Not a spare minute to waste but up beat day. Chase really surprised me today and was himself today. Wasn't fussy at all I was expecting melt downs and crying all day. He would get a little mad because he had to figure out how to do some things again.

We got a pretty good routine going around here. And kids know what to expect. We work pretty good has a family. Mike worked a little bit late which kept my day going a little late to being I had some shopping that needed done once he got home.

I am trying to figure out something to do with a one year old that would be fun for him. Mike will be in the fields this weekend.And the older kiddos will be at there moms. So me and chase will be having some mommy and son time. He needs a little highlight of his week just not appointments. I would hate to see what a depressed one year old would be. :)

Lost in thought

My body is running on over drive and at times I wonder if I am having a heart attack. I got everything ready to send out to the doctors.

Chase got his brace fitted today. We are keeping him in it for the hope of it at least just slowing down his curve from getting any worse. Chase is sound asleep in his brace. Looking down at him in it, I just start to cry. My baby boy is going threw so much that I just wish I could take away. I wanna know what's going threw his little mind.

I am really lost in words trying to type tonight. With everything running threw my mind. I feel like I am just going to fall apart. If I had a job,I would be having to quit at this moment. Once again with 7 appointments with week with chase and one of my own. Mike has been right along side of me doing what ever he can when he isn't in the fields. I am so glade that mike has also seen what EDF casting can do and is on borad for wanting it for chase. We will not let anything stop us from getting our kids the best medical care they need. I got to thank all my family and friends for being such great support too. They have offered help if they can. We couldn't be doing this alone. But I still at this point feel like I could be doing more for my lil boy to be heard.  

I will travel to the end of the world for him.

I am feeling a little better day. I am stressing myself to a headache. I have emailed so many people and doctors today.We are willing to traveling anywhere,I want to get a opinion on getting chase EDF casted. The results and info I have read is amazing. Bracing this young isn't really seen. And not any children's  hospital can do the type of casting we are looking at.

We really just had a at home type of days. Kids have been playing and Chase has been playing right along with him. I love to sit back and just watch it. 

Mikes been playing around with his race car getting everything worked out to get it to be running next year. Everything is planned to be tuned up this winter. And I gotta admit I am missing racing already. 

And everytime I have a free moment I am on here searching and searching. I cant stop thinking there is more that I can be doing for my baby boy. We need answers and the best treatment. And we don't have time spare. I keep wanting to wake up and this all just be a nightmare. Its consuming my life and my mind. I just keep thinking what if we don't do the right thing for our baby boy.

Google can be good and bad.

What a exhausting weekend. And I'm rethinking everything,I think its time for a second opinion and fast on Chase's back. After getting the brace. Which don't fit right. Poor baby can't do anything. It's to long. You try and sit him up and it digs in to his legs. I googled progressive infertile scoliosis and the information is over whelming I found a simular case to Chase's. Bex's story has shined some light and gave some hope.  www.girltomom.com , its hard to read that the condition that your child has can kill them unless treated correctly. You have to fight strong against it. A lot of researching and reading a lot of doctors articles I'm not convested anymore that bracing is the right way. A lot of pediatric orthopaedic believe casting can cure a child of the scoliosis. I feel I can't second guess my gut feeling. And can't just believe one doctor. Cady went with Chase and I to Springfield. It rained off and on the whole time. She is a great big sister. She likes carrying around her baby brother. It was hard for her to hold him in his brace. We invested in a new car seat while we was by a babies r us. I wanted a RF seat that can switch to front facing. We picked a good time to buy a new car seat. They had a trade in deal so we got 25% off our new seat. So I had to install the seat all by my self. Ended up getting rained on in the process. I hated to but I chase riding facing forward. I feel he is safest riding rear facing till 2 or even old till he hits the max wieght for it. I think it might be bed time. I had to get some shots of anti biotics at the er a while ago and I think they might be making me very tired I usually can't sleep till late. I can literally say thats a pain in the butt! . f