A whole lot of....NOTHING!

Busy day,but a nothing really got accomplished today. Was greeted once again to a exploded diaper.I love pampers best diaper I came across but Chase needs a overnight diaper I guess


I am got a phone call saying chase's brace wouldn't be ready till tommorw. And my appointment that was at 10am got rescheduled too. What is up with everyone this week not being able to keep my calendar set times and date.

Chase has been abnormally cranky for 3 days now. And just acting different from normal
So I just have a feeling tomorrow won't be a good day with him. I am going to feel so bad for making him wear the brace if he crys the whole time.

"Kid you got the prettiest eyes,But one ugly spine."

Two different approaches to one ugly spine

 I am so in thought of what the next week will be like with Chase getting the back brace. We seen the Chiropractor today and the Physical Therapist.Dr Morris(Chiropractor) had some good points of what we will deal with of the long term bracing and it makes me question the bracing treatment. The brace is going to cause muscle weakness in his torso. And I read that kidney problems are seen with the bracing too. I adore Dr Morris,He is wonderful Chiropractor,and now going on 2-3 weeks of chase seeing him 3x's a week.I trust him and his opinions, and I have a hope that he could fix the scoliosis now that he see's how much progress chase is looking. But also I respect Chase's Orthopedic doctor, because he has seen and treat scoliosis daily and has bracing,casting,and different surgical approach to scoliosis.But the thought of chase being in a brace for so long day in and day out. I just hope this is the right answer as a parent to make. To have to make decisions on someones health then yours is harder then making the choices for your own health. 

Boston Brace

Chase's brace is one of many types of bracing. And the most common one in the United States. The brace will go higher on the left to push up on his shoulder to counter act his right shoulder being higher right now due to the curve that pushes his right shoulder up.Padding in the cast will push his right rib cage in wards too. Its like straightening a macaroni noodle, you would push on the curve while pushing on the ends to make it straight. But there is difficulty's that come with the brace that doctors don't like to mention. I have read some movement restrictions are expected. And even eating difficulty's from the pressure on the abdomen is uncomfortable when digesting. You can have bone deformities from bracing the pressure on the hips and ribs have left bones dis-formed in cases. 

 

 

  

Everything just seemed to not wanna go right today!:)

Calm day around the house...that's all I hope for every day when I wake up. Does it ever happen? Rarely. I was greeted by a exploded diaper. Chase slept from 7pm to 8am. Pampers 12 hour protections can't hold up to my sons bladder at night. So I had a crib,chase,livingroom floor,and sleeper to clean first thing this morning and chase laughed the whole time in the tub. Like just telling me he thought it was a funny way to start the day.

I had one of them days where I just wanted to ask does someone find this funny because I don't. My van decide to just spray anti freeze out and start to over heat. And that won't be fixed till this weekend if it rains like its supost too. So I came home and cooked steaks for mike. Yeah,kinda forgot they were on while feeding chase. And well he didn't have to question if they was done or not, becaese they was well well done! After putting Chase to bed, I did the job everyone hates....clean the gutters. The first thing people would do is get your ladder out. Not I, our gutters are like 3 feet off the ground how great right? Gotta love this house! Earth homes are tornadoes safe, easy to cool. And if we lose power we have a generator that runs the whole house. So 10 mins later and poof the gutters are clean. Kids brought me a brownie home from youth group and that was a great pick me up too highlight the day of everything well getting overloaded or over done.

Oh the new trend around the house is to brok at everything. Yes, chase learned a new thing. A chicken goes brok brok bbbbrok. Well now that's the only vocab he wants to use. Even the dog gives him this weird look when chase broks at him.

"What your 12 and dont have a cell phone?"

Had to do some rearranging in my calender this week. Still a busy week,But thank god its half way over right? Friday now is my busy day. Thank god for smart phones. I keep my life on that thing. I keep doctor notes,my agenda, pictures,I email off it and lets not forget the important Facebook. What would we do with out technology? How in the world was my generation able to live with only analog phones?And NO Facebook. I remember getting a Myspace at the age of 16 or 17. But now kids these days have Facebook at 11. Not in this house! We a aware of the dangers. Its not a "trust issue"of I don't trust our kids with one. Its that they don't know any better. They still have time to mature. And if they have something to share with a friend. They can do it in person at school and not be posting their information on the internet for EVERYONE to see. But I remember when I was in middle school their was no pressure to have a cell phone. Now these days a kid comes across another kid in middle school with out a cell phone and its like "dude your telling me your 12 years old and don't have a cell phone yet, I had mine since I was like 10 yrs old." Rather then going out side playing after school its Txting, or facebooking, or getting on youtube after homework is done. I feel like it was forever ago since I was a kid but in reality it only been 10 years ago and I was 14 and in 8th grade.Cant imagine what we will have to deal with when Chase is 12-14 years old and what new technology will be out? Or will it just be" Your 13 years old and you don't have your own I-pad yet? I have had mine since 10 years old and this is my 2nd one" . I really just don't wanna know yet!

Yesterday was the basic day for us now. Chase had Chiropractor appt. in the a.m. I think he is really enjoying them now. Some of the stuff they do he will have this " oh that's the spot" face on. And never cries because what they are doing. And the Doctor knows how to make him cry. He just has to lay him on his back on the table and Chase hates that,sit him up and he stops. I am thinking its something to do with is scoliosis because chase never just choices to lay on his back. It seemed like 3PM was just a hour after 11a.m yesterday. Time flow, but the 2 and half hours of homework time just doesn't seem to fly by. We always have a book to read, 2-3 kids with math,2 kids with spelling homework,some type of project, some type of writing homework with Brooke,and either science or soc studies. And I go over everything. So yeah, you can add teacher to the list of things I do.

Question....

What age did your kid or kids have access to facebook and do you as a parent get on their facebook?

Tuesday already? Where did Monday go?

One busy day today. Well it got cut short a bit. DT(Developmental Therapy) cancelled already today. Kinda good news on us, chase can get a nap in at least today.We been seeing DT for a while to help him look more to the right to get him to use his neck and with the curve in his back he learned to sit up and use his left hand has support for balance. Now that he don't he still kinda over uses his right hand and ignores his left at times. While clapping toys together he will have his left hand still and his right banging. I know all these appointments in the end will be worth it and chase will be up to his level he should. When we tested him for all the therapy's he test just right have the minimum and by the scores it was at the point where he wouldn't need them but with his galactocismia it automatically qualified him for early intervention. We didn't know about the scoliosis at this point. Just his neck how it leaned and they diagnosed him with the toritacalis or what me and mike just thought was the chase ghetto lean. Later on when they was testing him to see what services we would need I pointed out to a person how his ribs looked odd and she agreed and told him to call his doctor ASAP and request a xray.Two days later we was in for a xray for scoliosis. And its been a full summer of appts and waiting for results and praying that we are doing the right treatment for him.

I couldn't wait last night for the kids to come home and I could ask how school went. Me and John have been working on spelling words and that little smart boy got a A on his first ever spelling test and Story test. I think I was more excited then he was. All he could say was that the teacher put someones paper in his folder and it wasn't his.He was so concerned and confused on how a teacher could do that.

Oh forgot to mention yesterday, Mike got a new toy. He traded his pure stock/bomber for a A-Mod. Which he will turn in to a B-Mod. We already had his brother come over to drool over it. Boys and their toys. When we got the bomber car we had 3 guys stop by in like one hour to drool and ask where he is running and so on. Its like a new baby every body has to come and see and "oooo" and "awwww" over it.
     

Got To Believe Life Will Slow Down At Some Point

I have failed once again at keeping up with blogging. When I do have time to blog. I like to just enjoy the piece and quite for a bit or I'm cuddled up to mike on the sofa watching a show before bed. 

But I keep thinking about blogging. And I just feel like its a calling for me.Now that school started for the older kiddo's my scheduled got even busier. The first week they was back in school, chase started seeing the chiropractor 3x's and physical therapy once a week and every other week I think he see's a occupational therapy. The Chiropractor is doing a amazing job with helping Chase with his neck. Chase was born with tordicalis(sorry that could be spelled wrong) but it means his head was probably positioned awkwardly in utro or it could be from the traumatic birth he had but his neck is use to be leaned over to right and chin to the left.So we are working with his neck to get him to hold it straight. His scoliosis will be treated with a brace for now has long as the curve does not progress and it starts to decrease. We pick up is cool blue camo brace on Friday. I am so nervous on how he reacts to having to wear the brace. I have did my share of research on bracing and surgery and every possible options. And has long as chase doesn't end up with Harrington Rods that I have I will feel like we beat the scoliosis. Because to this day I still have back problems and looking at another surgery in the near future. What doctors don't tell you about having 2 rods in your back is the maintenance of them. The chances of having to have more spinal fusing and if something goes wrong with the rods in your lifetime of having them. So with all the extra activity's going on right now me and chase have anywhere between 4 appts a week and like this week we have 7 appts this week. Between the appointments,keeping the house running, and homework with the kids every night. It take a toll on me and chase's sanity I feel. All chase wants to do with play and move around and now going everywhere like we have to and I don't blame chase for his fussy out breaks. Mommy wants some fussy outbreak time of herself!

I am so proud of how all the kids adjusted to everything that is going on. We have a pretty good routine going on with after school. With 3 kids now having homework I am usually doing homework with them for 2-3 hours. Brooke is still struggling with math this year. I don't know if its just if she isn't getting it or if its switching from saxton math to this different book. But its to the point where we both wanna pull our hair out because some of the questions or problems are simple but so hard for her where I get the point of thought "Is she just trying to get me to do her homework?"

I am still battling a long battle with my long on going health problems at the moment. Which keep interfering with my crohn's treatment. I need to find a doctor that understand my concern. Being a carrier of MRSA isn't a healthy thing and getting remicade and having this isnt a good thing too. And I cant get my port replace back in because I cant have surgery while being a MRSA carrier. So in the end I am in a lose lose situation.