A Weekend of Pictures!

We are one busy family. I feel like a dog chasing my tale sometime. One tip I have for any family is to write down everything. I have been living off of 2 calenders and with Chase's medical history and on going treatment if you would call it that is so in detail I have to write down anything and everything. If I ever lost my calendar book and Chase's medical note book I would be lost. 

The sheep just loved the attention. 

We found time this weekend to take some time away from the house. Chase has been sick with a cough so has mike and john. So Dar,Cady and I went to the harvest fest.






We fed some goats,petted sheep, went on a hay ride,and picked some pumpkins.

We enjoyed the day out but couldn't stop feeling like we was missing 3 other kids and Dad along. We now sometime this week got to do something with out pumpkins.





We having all the reports need to shriners. Now it should be this week that we Chase's casting date which should be with in the next week or 2. Praying we get Nov 4 as a casting date. I hear that a lot of casting family I have been talking to will be going that day also. I am still a emotional wreck. I feel my depression really setting in. And I feel depressed that I even feel this way. But I keep most of it hidden in.

Mommy and Babycakes

We had a fun filled picture weekend!

Just seems like yesterday,but really its been 10 years.

It went from warm summer to BAM its fall, its pretty cold out. Put away the summer cloths and got the nice warm comfy close out this weekend. The awful cold is going around the family house already too. YUCK.

With no news from Chicago Shriners yet on when Chase will be getting his first cast. And if not anytime in the near future. We got Cincinnati children's hospital and SLC Utah Shriners willing to take on chase's case and both agree on EDF casting. With every pasting month or even week,we are losing time. Did you know the human spine grows 50% of its growth in the first 2 years. So we got roughly 10 months of this growth spurt time to hit this curve hard! I don't want to waste this time.

Today marked 10 years since I had my surgery for my scoliosis. I have 2 Harrington rods going down my back. Having had this done, drives the pushy mommy in me. I am meaning I will do what ever it takes to make sure Chase is on the right path of treatment to make his chance's less of ever having to ever have these rods. What they didn't tell me and my parents when I had them placed that I would probably looking at atleast another spinal fusion. I found out 4 years ago that I'm already in need of this. My new surgeon told me wait till my lower back is hurting and that's our time to start planing the fusion.  Well its been hurting 2 years now. And even worse now after chase was born. I am fighting it and putting it off longer now. Can you imagine being down for 6-8 weeks not being able to carry you 1 year old around that is also in a cast. Yeah not possible at this time.

I know my blog has been taken over by scoliosis and chase's health. Well that's my life right now. I have no other life at the moment other then appointments, the house, kids and the stuff that needs to get done. I hope stuff gets to slow down around here. This mommy is just tired and wore out. I have gotten use to everything well the schedule of it. Mentally, I'm exhausted and overwhelmed still and question everything.  

We finally are on the road to straightening a ugly spine of our cute little boy.

With 503 miles behind us, I feel like we are now on the right road of getting chase's Progressive Infantile Scoliosis straightened out. We left mid morning for Chicago.With the only thing on my mind was knowing this probably will be the first of many trips to Chicago.

I hated to think what chase was thinking of everything going on. One long trip staying in a weird place where he had to sleep and it just wasn't like home. Then the driving in Chicago is SO crazy. I don't know how he could take a nap in the crazy driving. But he did enjoy the closet doors in the hotel full length mirrors he spent most of his time in the hotel room admiring the cute baby in the mirror.  

The whole time we was in Chicago waiting for 9a.m. Friday to come. I felt that feeling you have waiting in the doctors office waiting room when your waiting for test results. That unknown fear. The feeling I have had since I knew chase's best chance of beating this ugly spine condition would be getting him in to a doctor that does this type of casting. I still have this heavy feeling on my heart for chase. What he has to go threw. I know in the end he will be better but its going to be a long road. 

Friday 9am could of not came any slower. We got there and felt like for ever waiting for them to call "Chase".Once back there we didn't have much wait at all to see the nurse then a intern and finally the doctor. Everything the doctor said I have already read on the internet. The intern need to learn some more stuff before she should be aloud to see patients. She looked at me and shock her head like I took my son to a witch doctor when I told her my son has been seeing a chiropractor for his torticalis in his neck. For one she practically refused to think he ever had it in the beginning because he don't show it now. When she was telling Dr Hammerburg Chase's medical history she mentioned that he had torticalis and parents have been taking him to a chiropractor for it. And he looked at his neck and was stated "well he don't have it now". All that was said. But down to the main part of the appointment. Chase had x-rays done and good news is the curve is still at 60 degrees(Cobb angle) Bad news is its still at 60 degrees and hasn't went down. Dr. Hammerburg's feels casting will be better for chase.But the better results with casting is seen in lowing degrees. 60 degrees is a pretty high number. This curved developed in 4 months or less. We don't know how fast it grew ,we just know the time frames of a chest x-ray chase had to get done 4 month before we took him to the doctors because his ribs just started looking weird. A curve of 80-100 can be dangerous. Progressive Infantile Scoliosis is the leading orthopedic condition to be fetal for infants. No one hates likes hearing that. But its something that makes you even hug your kids a lil bit tighter.

Saturday Mike had to work,so it was just me plus the 5 kiddo's. Once they came over and had to pick one up out of town. Which it was a good car ride to clear my mind. All the kids in a good mood and singing alone with the radio. Just going do some country road(which the kids love because its one hilly little road). Which I know pretty good because I use to drive it home a lot when I lived 10 miles away from Litchfield. How simple life us to be then. I had my friends over for dinner and went to the drive in for the last time this year. Mike and Chase stand back from tiredness. It was good spending some one on one time with the kids. But I couldn't help but still think about my little baby boy that was sleeping in his crib. 

Even when not at a appointment for chase or in Chicago.For what he is going threw and this family with him is always on my heart.I see how people and kids look at him with just the brace on not knowing why he has it. It breaks my heart that my little boy isn't getting attention for his big blue eyes or that he should be a baby for Gerber advertisement like a lot of people says he should. But because he is different and people just don't know what progressive infantile scoliosis is. I know he will be OK threw this. Its just the long road, the ignorant people, the challenges, and the unknown that's on our hearts.     

So right now we are just playing the waiting game again. Dr Hammerburg's nurse will be calling sometime this week to be telling us when Chase's first casting day is.